Mission Statement

The mission of the Remi Savioz Glut1 Foundation (RSG1) is to fund research, awareness and education of Glucose Transporters and Glucose Metabolism which affect the treatment of cancers, Alzheimer's, Glucose Transporter Type 1 Deficiency Syndrome (Glut1 DS), epilepsy, ALS, heart disease and diabetes.

 

The RSG1 Foundation will provide assistance and support to its broad patient community by providing educational tools for students and school districts that teach children to make a positive impact and teach adults about rare diseases through our “Kids Helping Kids” and “Learning in the Lunchroom Programs.” 

 

RSG1 will also provide patient assistance programs for children in the Pittsburgh, PA community and other regions with our “Scales for Patients Program.”  RSG1 will continue to develop and fund programs in Pittsburgh, PA for children with rare brain diseases and children that suffer from epilepsy that are non-responsive to traditional drug therapy.

 

The RSG1 will provide funding for the RSG1 Brain Fund at Children’s Hospital of Pittsburgh to better serve patients and the medical community at large.  The Foundation will continue to work towards its mission until no child remains without a treatment, cure, proper diagnosis or whose lives are improved and enriched by our efforts.    
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Current and Ongoing Projects:

 

  •   In home Ketogenic Diet Counseling and Support for families and patients. 
 
 
  •   Glucose Transporter Conference 2012, July 6 & 7 in Orlando, Florida. 

 
 
  •   An exhibit booth at the 2012 Annual American Academy of Neurology’s Conference; and

 

  • A developing partnership with Children's Hospital of Pittsburgh and funding the RSG1 Brain Fund at Children's Hospital of Pittsburgh. 

 

  • The "Remi Savioz Glut1 Foundation" (RSG1) has been chosen to participate as a benefiting organization in the 2012 Highmark Walk for a Healthy Community, for their 10th Anniversary.  The event will take place on May 19, 2012.

 

  • "Making A Difference" by working with other Pittsburgh based non-profits to enrich the welfare and well-being of the Greater Pittsburgh Community!  Helping those that suffer, persevere! 

 

  • Involvement in and awareness of, "National Rare Disease Awareness Day"

 

  • The Remi Savioz Glut1 Foundation (RSG1) has joined forces with NORD, EURODIS, the United Way of Allegheny County and "The Global Genes Project."

 
Background Statement
The Remi Savioz Glut 1 Foundation was founded in January 2010 by Samra R. Savioz, to raise funds for the research of  diseases affected by Glucose Transporters and Glucose Metabolism.  These diseases include cancers, Glut1 DS, diabetes, ALS, epilepsy, Alzheimer's and heart disease, as well as to raise money to support awareness and education that will eventually lead to finding advanced treatments and cures for these and other disorders associated  with Glucose Transporters and Glucose Metabolism. 
 
The Savioz family began this mission after being told by researchers that little could be done to help their daughter Remi who was diagnosed with Glut1 DS in 2008, due to a lack of funding. 

Community Vision

To empower youth so that they recognize who they are, what kind of impact they can have in their communities, what their values are, and how advocating for children with special needs (particularly those afflicted by rare diseases) through means of social awareness projects can develop a higher quality of life for everyone in the community.  
Foundation Partners & Affiliates
The Remi Savioz Glut1 Foundation is proud to announce its partnership and affiliation with the United Way of Allegheny County, Pittsburgh Gives, The Pittsburgh Foundation, NORD (National Organization of Rare Disorders), Rare Disease Day 2011 and the Dick's Sporting Goods Pittsburgh Marathon and Childrens Hospital of Pittsburgh at UPMC.
"Make A Difference"
Team RSG1
Day of Giving, October 4, 2011
United Way of Allegheny County
Book/Code No: 10231835