The Remi Savioz Glut1 Foundation ("RSG1") is a 501(C)(3) non-profit volunteer organization dedicated to funding research, education and awareness of Glucose Transporters and Glucose Metabolism, with a razor-focus on advancing treatments for Glucose Metabolic diseases such as:  Alzheimer's, dementia, epilepsy, heart disease, ALS, cancers and diabetes and Glut1 DS.  RSG1 is also committed to creating an awareness of rare diseases. 

RSG1 was created and founded by Samra R. Savioz, mother of Remi Sophia Savioz in December 2009.  Remi was born on May 20, 1998 and remained undiagnosed until 2008.  The vision to create the Foundation stemmed from her parents learning that funding had ceased in 2008 by the National Institute of Health.  Persistence, faith and love motivated one mother to spearhead the establishment of RSG1.

RSG1 is comprised of an elite group of esteemed medical, legal and business professionals who have dedicated their time, expertise, and energies toward creating a network of support and hope.
Board of Directors

 

Samra R. Savioz, President & Founder
Leonard C. Savioz, Vice President/Medical Liaison
Thomas P. McGinnis, Esq., Board Chair
Rochelle Rosen, M.D., Medical Consultant
Mary Taylor, Director of Programs
Martin Dekker, CPA, Treasurer
Laraine F. Davis, Secretary

Tiffany Collins, Board Member

Sean Collier, PR

Kristina Martin, PR


Chief Medical Advisor
Michael Mueckler, Ph.D.
Departments of Cellular Biology and Physiology,

Washington University,

Research in my laboratory is concerned with understanding the regulation of glucose metabolism
and its derangement in various disease states.

 

 

GT Conference Attendees & Contributors

Dr. Charles Burant, University of Michigan
Dr. Sherin Devaskar, UCLA
Dr. Mary Newport, Spring Hill Regional
Dr. Susan Vannucci, Cornell University
Dr. Bess Marshall, Washington University
Dr. Michael Mueckler, Washington University
Dr. Simon Fisher, Washington University
Dr. Paul Hruz, Washington University
Dr. Anthony Carruthers, UMass-Worcester
Dr. Gao Guangping, UMass-Worcester
Dr. Ian Simpson, Penn State University-Hershey
Dr. Morris White, Harvard University
Dr. Amira Klip, University of Toronto
Dr. Joerg Klepper, Children's Hospital of Aschaffenburg, Germany
Dr. Dominic D'Agostino, University of South Florida
Dr. Henri Brunengraber, Case Western Reserve University
Dr. Thomas Seyfried, Boston College
Dr. Adrienne C. Scheck, St. Josephs Hospital Medical Center

 

Legal Advisor
Lewis U. Davis, Jr., Esq.

Buchanan Ingersoll & Rooney PC 

 
Additional Information About RSG1

The RSG1 Foundation will provide assistance and support to its broad patient community by providing educational tools for students and school districts that teach children to make a positive impact and teach adults about rare diseases through our “Kids Helping Kids” and “Learning in the Lunchroom Programs.”

RSG1 will also provide patient assistance programs for children in the Pittsburgh, PA community and other regions with our “Scales for Patients Program.”RSG1 will continue to develop and fund programs in Pittsburgh, PA for children with rare brain diseases and children that suffer from epilepsy that are non-responsive to traditional drug therapy.

The RSG1 will provide funding for the RSG1 Brain Fund at Children’s Hospital of Pittsburgh to better serve patients and the medical community at large.The Foundation will continue to work towards its mission until no child remains without a treatment, cure, proper diagnosis or whose lives are improved and enriched by our efforts.