The Remi Savioz Glut1 Foundation ("RSG1") is a 501(C)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Glut1 DS and other disorders connected with Glucose Transporters, which will also impact diseases such as epilepsy, cancers and diabetes.  RSG1 is committed to creating an awareness of rare disease. 

RSG1 was created and founded by Samra R. Savioz, mother of Remi Sophia Savioz in December 2009.  Remi was born on May 20, 1998 and remained undiagnosed until 2008.  The vision to create the Foundation stemmed from her parents learning that funding had ceased in 2008 by the National Institute of Health.  Persistence, faith and love motivated one mother to spearhead the establishment of RSG1.

RSG1 is comprised of an elite group of esteemed medical, legal and business professionals who have dedicated their time, expertise, and energies toward creating a network of support and hope.


Board of Directors

Samra R. Savioz, President & Founder
Leonard C. Savioz, Vice President/Medical Liaison
Thomas P. McGinnis, Esq., Board Chair
Rochelle Rosen, M.D., Medical Consultant
Mary Taylor, Director of Programs
Denise Hebb, CPA, Treasurer
Samuel A. Kane, Marketing & Communications Director
Laraine F. Davis, Secretary


Chief Medical Advisor

Juan M. Pascual, M.D., PhD
     Departments of Neurology, Physiology and Pediatrics
     The University of Texas Southwestern Medical Center
     Medical Director, Rare Disorders Clinic, Division of Pediatric Neurology and Children's Medical Center


Legal Advisor

Lewis U. Davis, Jr., Esq.
     Buchanan Ingersoll & Rooney PC  








Dr. Juan M. Pascual